Maalouf, Eliane

2021-6-30, De Santo, Alessio, Maalouf, Eliane, Cotofrei, Paul

2019-9-13, Cotofrei, Paul, Maalouf, Eliane, De Santo, Alessio

2021-6-1, Cotofrei, Paul, De Santo, Alessio, Maalouf, Eliane, Stoffel, Kilian

In the context of a decentralized approach for health data resources, a central metadata repository becomes essential for the identification/description of the necessary resources. A Swiss Health Metadata Repository is expected to enable multiple advantages, namely: to provide a single entry point for searching/retrieving health-related resources; to help identify possible semantic linking between data sources; to provide a consistent data catalog ensured by the use of standardized vocabularies/ontologies; to enable potential exchange of experience and know-how between health data-related projects in Switzerland; and to increase the capacity of research groups to share/access/analyse health related data. This policy brief focuses on the implementation aspects of a proof-of-concept proto-type for Swiss Health Metadata Repository.

2018-9-18, De Santo, Alessio, Maalouf, Eliane, Cotofrei, Paul

2020-1-31, Cotofrei, Paul, Maalouf, Eliane, De Santo, Alessio, Stoffel, Kilian

The Swiss Health System is a complex system with different groups of actors for which data is collected and analyzed using various methods, leading to a large heterogeneity and dispersion of available data. The specificities of a Swiss Health System favor a hybrid infrastructure to manage the heterogeneity and dispersion of Swiss health-related data. This policy brief shows the importance of a metadata management infrastructure to identify and describe health data resources and highlights several essential key elements for the design of a metadata repository and also raises important practical questions.